Sept. 18, 2013

       
 
PHA News, Pulmonary Hypertension Association, Empowered by hope
Blog Post from PHA's President
   

Dr. Hudak's Delayed Diagnosis Story...

During the past year, PHA has been developing an Early Diagnosis Campaign. Titled "Sometimes It's PH," the campaign emerged from recent publications showing that over the past 20 years, despite the increased visibility for PH, there has been little if any reduction in the time from onset of symptoms to point of diagnosis. Dr. Lynn Brown at the University of Utah leads the campaign and writes a column that circulates quarterly to 40,000 physicians through PHA's medical journal, Advances in Pulmonary Hypertension. Here is her newest column. It is the compelling diagnosis story of Dr. Bonnie Hudak, a pulmonologist living with PH. » Read more

Major Recommendations Published
   

PAH Screening Recommendations Published for Connective Tissue Disease

The first recommendations for screening and detection of PAH in connective tissue disease were published last week in a medical journal. An international group of medical experts have developed these guidelines that are evidence- and consensus-based. The recommendations, which call for annual screening for PAH in systemic sclerosis patients and patients with mixed or other connective tissue diseases with scleroderma features, appeared in the journal Arthritis & Rheumatism. Read more | Learn more about PH & Scleroderma

PH Advocacy in Action
    Noel Holly and Rep. Dana Rohrabacher

PHers Bring Advocacy Home

Every August, Members of Congress return to their home states to meet with voters like you and your neighbors. This year, several PH community members took advantage of this opportunity. They met with their senators and representative to educate them about PH and to ask them to co-sponsor the Pulmonary Hypertension Research and Diagnosis Act of 2013. » Read more

For Medical Professionals: New Online Course
    PHA Online University

New CE Course Available on PH Therapies for Children

A new course on PHA Online University, Pediatric Pulmonary Hypertension by Michelle Cash, MSN, RN, APRN, describes the various drug therapies for children with PH. It covers five areas to ensure correct administration of medication to children with PH and explores available resources for pediatric PH patients and their caregivers. View course for pharmacy credit | View course for nursing credit

PH News Headlines
   

Research & Treatment News
» In New Health Law, a Bridge to Medicare

Updates From PHers Around the World
» Generation Hope Blog: 10 Ways to Kick PH's Butt

» Bride-to-Be Battles Lung DIsease

» Cuba Grad Awaiting Double Lung Transplant

» More News

Connect
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Telephone Support

Patients
Sept. 26, 2013
8 p.m. ET/5 p.m. PT

Caregivers
Oct. 16, 2013
1:30 p.m. ET/10:30 p.m. PT

Parents Webinar: Pediatric PH 101
Oct. 30, 2013
8 p.m. ET/5 p.m. PT

Upcoming Events

Sept. 20-22, 2013
PHA Canada's 3rd National PH Conference
Ottawa, Canada

Sept. 21, 2013
O2 breathe Walk
Palatine, Ill.

Sept. 29, 2013
Angel Island to Tiburon O2 breathe Swim for a Cure
San Francisco Bay, Calif.

» Go to the Events Calendar

Video Spotlight

Color PHor A Cure

Are you ready for the craziest, most colorful 5k of your life? Color PHor A Cure, the biggest and brightest 5k race, is coming to Jennings, La., on Oct. 12. Watch the video and share it with your friends

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.