Jan. 23, 2013

       

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PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    Associated Disease Videos

PH + [Your Condition Here] + People Who Understand

Guest post by Kim Lamon-Loperfido, PHA's Manager of Patient Outreach & Services
As I started my tenure at PHA in August, I was tasked with seeing a new video series from post-production work to going live on the PHA website. As a new staff member, I have learned so much about PH and associated conditions through watching these videos and I hope that you do too!  » Read more

What's In This Issue
   

» Spotlight On... Make Your Idea Reality
» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...
    Lantos grants

Make Your Idea Reality

Have an idea for creating a resource for our community, raising awareness, advocating or educating the community, but need money to act on it? Make your idea a reality with a Lantos grant of up to $5,000! Apply by Feb. 27. Details | Register for the Jan. 29 webinar

Get Smart
    Newly Diagnosed

Newly Diagnosed?
What You Need to Know

Monday, Jan. 28, 3 p.m. ET/12 p.m. PT
If you were recently diagnosed with pulmonary hypertension, please join us for a webinar especially designed for newly diagnosed patients. Wendy Hill, MSN, NP-C, will review the basics every pulmonary hypertension patient should know about PH, its treatment and coping with this disease. » Register now

Living Better with PH
    New Year - Fresh Start

Starting Out the New Year Right: Making a Commitment to You!

Friday, Feb. 1, 2 p.m. ET/11 a.m. PT
Start out the new year right by making a commitment to yourself to achieve the best health possible. Join Christine Archer-Chicko, MSN, CRNP, as she shares strategies on being proactive about your health and improving your quality of life. » Read more

PH Community Scoop
    Rare Disease Day

Get Involved!
Rare Disorders Without Borders

Did you know there are 30 million Americans and more than 100 million globally living with a rare disorder? Rare Disease Day, Feb. 28, is a great way to raise awareness of PH while supporting a larger cause. Getting involved can be as easy as taking a photo. » Read more

From the PHA News Desk
    Thank you for supporting PHA

End of Year Gifts Top $95,000

Because of your generosity, we were able to raise more than $95,000 for PHA's many programs and services through our End of Year Appeal. The work of this organization would not be possible without the dedication, support and passion of our PHriends. Thank you to everyone who supported this effort.

Medical Community Bulletin
    Advances: Conference Highlights

A Second Chance at Conference 2012

The latest issue of Advances in Pulmonary Hypertension highlights the scientific achievements presented at PHA's 10th International PH Conference and Scientific Sessions. » Read now

PH News Headlines
   

Updates From PHers Around the World
» Student Studies Idiopathic Pulmonary Arterial Hypertension in Science Talent Search

» More News

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Jan. 24, 2013
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Feb. 20, 2013
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Feb. 21, 2013
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Video Spotlight

Highlights from PHA's 10th International PH Conference

Li Rong is a documentary filmmaker who co-founded iSeek PH Cultural Center, a nonprofit for families, caregivers and medical professionals living and working with PH in China. She attended PHA's 2012 International PH Conference and International Leaders' Summit in Orlando, Fla., where she made this video. The piece touches on PHA's beginnings and features many leaders from PH associations around the world! Li Rong appears in the video introducing the international aspects of the conference. (Video in Chinese and English, begins after a short ad.)  » Watch now

Read this week's Generation Hope blog post "A New Year, Let's Reflect!"
Gain some piece of mind: A handy way to keep your medical documents in order
 
 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.