Jan. 9, 2013

       
 
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    PHA's new executive directors of our field offices in New York, Chicago and the San Francisco Bay area

As We Begin 2013: An Important New Direction for PHA

Almost exactly one year ago, I began an important new conversation with PHA's Board of Trustees. At that time, PHA was able to look back on significant and almost uninterrupted growth during the past dozen years. Looking forward, however, we anticipated that, without changes, this growth could be at risk.  » Read more

What's In This Issue
   

» Spotlight On... Coverage Connection
» Get Smart
» Website Discoveries
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...
    Coverage Connection

Get Covered, Get Connected

What do Medicare Open Enrollment, healthcare reform and high-risk insurance pools have in common? They're complex, important and they are all topics highlighted in Coverage Connection, PHA's monthly insurance e-newsletter. Subscribe to Coverage Connection for easy-to-digest doses of the latest PH-focused insurance and healthcare news. » Subscribe and read the latest issue

Get Smart
    Yoga

Calm, Cool and Collected:
Restorative Yoga for the PH Patient

Tuesday, Jan. 22, 2 p.m. ET/11 a.m. PT
Yoga can be a safe, restorative and rewarding option for PH patients looking to stay active. Join Rana Awdish, MD, for a presentation on the benefits and best practices for PH-friendly yoga. » Register now

    Newly Diagnosed

Newly Diagnosed?
What You Need to Know

Monday, Jan. 28, 3 p.m. ET/12 p.m. PT
If you were recently diagnosed with pulmonary hypertension, please join us for a webinar especially designed for newly diagnosed patients. Wendy Hill, MSN, NP-C, will review the basics every pulmonary hypertension patient should know about PH, its treatment and coping with this disease. » Register now

Website Discoveries
    Healthy Food Shopping

Things I Found by Kathryn Frix: PHA Classroom News Feed

I know many people are wondering when the recordings from PHA's 2012 PH Conference will be available. If you sign up for the PHA Classroom News Feed, the announcements will come right to you and you'll be among the first to know about upcoming e-learning events and new recordings in the Classroom. » Read more

PH Community Scoop
    Holiday card exchange

PH Kids Spread the Love ... to Each Other

More than 30 children with PH from around the world exchanged greeting cards this holiday season, sending warm wishes to each other as they cope with the same rare, chronic disease. "Abby's entire December was brightened by the cards received from so many different places," says her mother Jackie. » Read more

From the PHA News Desk
    It's not too late to donate

It's Not Too Late to Support
PHA's End of Year Appeal

PHA is funded by the generosity of community members like you. Support PHA‘s life-changing programs and services for patients and family members this year by making a donation today. » Donate now

Medical Community Bulletin
    PHA Online University

Scientific Sessions Available on PHA Online University

Not able to attend PHA's 10th International PH Conference and Scientific Sessions? Recordings are now available. Highlights include:

  • Chasing the PH Gene: What Have We Caught?
  • PAH as a Systemic Disease
  • Pathogenesis of PAH: Clues from Patient and Animal Models of Hereditary Hemorrhagic Telangiectasia
  • And more!
» Watch now at www.PHAOnlineUniv.org
Also of Interest
    Health Insurance

Don’t Miss the Medicare Advantage Disenrollment Period

The new year brings new health plan possibilities for Medicare beneficiaries. Jan. 1 through Feb. 14 is Medicare Advantage Disenrollment Period — your opportunity to switch from a Medicare Advantage plan (private health plan) to Original Medicare. » Find out what you need to know

PH News Headlines
   

Research & Treatment News
» Disruption of Cellular Signaling Identified in Pulmonary Arterial Hypertension

» FDA Announces Recall for Grab ‘n Go Vantage Portable Oxygen Cylinder Units

Updates From PHers Around the World
» Health Aware: Managing Life with Chronic Lung Disease

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Telephone Support

Caregivers
Jan. 16, 2013
1:30 p.m. ET/10:30 a.m. PT

Parents
Jan. 17, 2013
8:30 p.m. ET/5:30 p.m. PT

Patients
Jan. 24, 2013
8 p.m. ET/5 p.m. PT

Video Spotlight

Associated Disease Videos

"The most challenging part of living with multiple illnesses is managing your care" — Anna Bower
In this new video series, hear stories from PH patients living with associated diseases and the healthcare professionals who treat them. » Watch now and tell us what you think

Please provide your feedback by Jan. 18

Read this week's Generation Hope blog post "What Are You Eating?"
You're not alone with PH: Learn how other patients and caregivers cope
 
 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.