July 10, 2013

PHA News, Pulmonary Hypertension Association, Empowered by hope
Blog Post from PHA's President
    U.S. Capitol

The Bill is in ... Now It's Up to You

Did you know that there is a bill in Congress dedicated to making life better for people with PH? It’s called the Pulmonary Hypertension Research and Diagnosis Act. Some of you may be familiar with PH legislation from previous years, but our new bill is completely different. What I like about it is that it’s designed to make a big impact without asking the government to spend any new money. The bill may be new, but its success still depends on you. » Read more

From the PH Community: PH Plus Blog

Going from Miles to Inches

It’s that last mile of the race – you feel your mouth getting drier and your breath getting heavier. Your legs have grown weak from the previous miles, and it seems like asking them to push through just one more is preposterous. Suddenly, you hear claps and cheers and chants. The blurred sidelines crowded with people start to come into focus in your peripheral, and you feel their encouragement rush through you. That last mile turns into a couple of inches.

Defeat is really only a state of mind, and your strength can build, crushing all negative thoughts with the encouragement and support of others. » Read more

Upcoming Webinar for Family and Friends

PH Caregiving 101

Wednesday, July 24, 2013
8:30 p.m. ET/5:30 p.m. PT
Your family member or friend has just been diagnosed with pulmonary hypertension. You want to help them, and you’re trying to find your role among all the new medical jargon, routines and expectations. Join us for this webinar to learn what “caregiving” means and get tips for being an effective caregiver. New and experienced caregivers welcome! » Register now

For Medical Professionals
    PHA Online University

The ABCs of Teaching Adult Patients and Healthcare Providers

Friday, July 12, 2013
2 p.m. ET/11 a.m. PT
Teaching adults requires very different skills and strategies from teaching children. In this webinar, Jennifer Priziola, PharmD, BCPS, and Jacqueline Brewer, BSN, RN, will cover the steps to effectively teach not only your patients but also colleagues who may be new to the PH field. Learn strategies on engaging your audience, communicating your message and measuring what is being learned. » Register now

PH News Headlines

Updates From PHers Around the World
» Generation Hope Blog: "I Breathe; Therefore, I Live." A Life Lesson From My Grandmother

» Breathing Easier, Lung Patient Starts Nonprofit

» News from South Africa: Rare Illness Makes Life a Struggle

» More News

with PHA


Telephone Support

July 15, 2013
11 p.m. ET/8 p.m. PT

July 17, 2013
8 p.m. ET/5 p.m. PT

July 24, 2013
8:30 p.m. ET/5:30 p.m. PT

July 25, 2013
8 p.m. ET/5 p.m. PT

Upcoming Events

July 13, 2013
2nd Annual Running of the BULL-e-vard Pub Crawl & Concert
Kansas City, Mo.

July 26, 2013
O2 breathe "Under the Stars Lounge" with Brian Wilson and PHriends
Highland Park, Ill.

July 29, 2013
6th Annual Swing 4 the Cure: Wojo PH Golf Classic
Aliso Viejo, Calif.

» Go to the Events Calendar

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Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.