June 12, 2013

PHA News, Pulmonary Hypertension Association, Empowered by hope

PHANews is looking good!

  We are continuing to bring you a shorter, sleeker e-newsletter. The format has changed so we can better highlight key news from the PH community. Want more? Be sure to subscribe to the PHA Daily Beat to receive PH updates everyday.
Blog Post from PHA's President
    Travels with Carl

Travels with Carl ... #1

Since December, Carl Hicks has taken on a new responsibility for PHA - building our important new chapter structure. As he takes on considerable travel for this job, Carl has gained an opportunity to connect with PHers around the country. This is the first in an occasional series of guest blogs from Carl. » Read more

From the PH Community
    Colleen Connor

Colleen Connor's Philadelphia Gala Raises the Bar

Colleen Connor had a wish that her health would improve enough so she could host a fundraiser and awareness campaign for pulmonary hypertension. On April 27, not only did she fulfill her wish, she achieved a significant milestone for PHA -- hosting one of our most successful fundraisers ever! » Read more

Join PHA or Renew Your Membership

Receive a Complimentary Survival Guide When You Join Today

PHA’s late founder Dorothy Olson dedicated her life to helping fellow PH patients and sharing her knowledge about living with this disease. To honor her memory and spirit, PHA is contributing 500 copies of the current Fifth Edition of Pulmonary Hypertension: A Patient’s Survival Guide to our community. » Get your free copy when you join or renew your PHA membership!

Calling All PH Kids and Teens!
    PHA Art from the Heart

Kids and Teens, Put Your Creativity to Work for a Cure

Kids in the PHA community, ages 15 and under, are invited to submit artwork that tells a PH story to the PHA Art from the Heart design contest. Winning artwork will be printed on PHA bookmarks which will be used to raise PH awareness and funds to fight PH. » Learn more

For Medical Professionals & Families
    Building Medical Education in PH

Family Session Included in Neonatal & Childhood PVD Conference

June 21-22, San Francisco, Calif.
PHA is partnering with the University of California, San Francisco School of Medicine for the 6th International Neonatal & Childhood Pulmonary Vascular Disease Conference as part of the Building Medical Education in PH (BME) program. This conference will bring together international experts to explore our current understanding of the basic pathobiology as well as new and future therapies for neonatal, pediatric, and adult pulmonary vascular diseases. This BME event includes a special session for families of children living with PH. Learn more | Register

PH News Headlines

Research & Treatment News
» Pulmonary Hypertension Can Cause Shortness of Breath

» RNAi Therapeutic Delivery Using EGEN's Nanoparticle System for PAH Treatment

» Four Investigators, Mentors Receive Grants for PAH Research

Updates From PHers Around the World
» A Strong Heart: Mother Endures Despite Medical Condition

» Living with Rare Diseases: Why Awareness Matters

» Honoring a Comeback: Mount Ayr, Iowa, Woman Survives Double-Lung Transplant

» More News

with PHA


Telephone Support

June 17, 2013
11 p.m. ET/8 p.m. PT

June 19, 2013
8 p.m. ET/5 p.m. PT

June 19, 2013
1:30 p.m. ET/10:30 a.m. PT

June 27, 2013
8 p.m. ET/5 p.m. PT

Upcoming Events

June 15, 2013
PHA on the Road: PH Patients and Families Education Forum
Durham, N.C.

June 15, 2013
PHun Walk for Shelley
Wanaque, N.J.

June 24, 2013
"On Par to a Cure for PH" Golf Classic
San Ramon, Calif.

June 24, 2013
2013 JFK Tower Golf Tournament
White Plains, N.Y.

June 26, 2013
PHA Online University Webinar: Chronic Thromboembolic PH

» Go to the Events Calendar for many more June events

PHA on the Road


Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.