March 7, 2013

       
 
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    World Symposium on PH

The Fifth World Symposium on PH

Feb. 28 was Global Rare Disease Day. On that day, I was struck by where I was and who I was with. PH may be rare but it is not forgotten. » Read more

What's In This Issue
   

» Spotlight On... New Chapters
» Get Smart
» Resources for You!
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...
    PHA Chapters

PHA Chapters Launch in Illinois, San Francisco and New York

For the first time ever, PHA has launched chapters in local areas to support the work we do. They will be raising awareness and funds in support of our mission through cause-related special events as well as through corporate and private major gifts. If you are in these areas, find out how you can get involved: www.NY-PHA.org | www.IL-PHA.org | www.SF-PHA.org

Get Smart
    Advocating in Everyday Situations

Caregiver Webinar: Advocating in Everyday Situations

March 20, 1:30 p.m. ET/10:30 a.m. PT
Presenter: Allyson Rupp, LCSW

As a caregiver, you may find yourself in the position of advocating for your loved one in many everyday situations: at the supermarket, the doctor's office, with friends and more. This webinar will discuss how to approach these situations, how to best support your loved one in advocating for themselves when appropriate, and what to do when you just can't get the message through. Register now | Print reminder postcard (PDF)

    Upcoming Webinar: Breathing Your Way to Calm

Breathing Your Way to Calm

March 25, 2 p.m. ET/11 a.m. PT
Presenter: Rana Lee Adawi Awdish, MD

Develop your personal toolkit for coping with stressful situations. Join Dr. Rana Awdish for a presentation on using breathing techniques and meditation as a means of stress relief. » Register now

Resources for You!
    PHA Store

PHA Store Has a New Look!

Download free resource materials instantly on the newly revamped PHA Store, your one-stop shop for PHA apparel, keychains, greeting cards, members-only discounts and more. » Shop now

PH Community Scoop
    Be a PH Superhero

Be a PH Superhero: Share Your Story!

Each time you share your story with your Members of Congress and reporters in your area, you're flexing your PH awareness-raising muscle! PHA, your trusty sidekick, is here to help you get started.
Contact Elisabeth at 301-565-3004 x753 or PHAware@PHAssociation.org to learn more.

From the PHA News Desk
    Survival Guide

Survival Guide as an e-Book?

That's right — PHA is taking another step into the digital age and is considering offering the next update of Pulmonary Hypertension: A Patient's Survival Guide as an e-book. The Survival Guide will still be available as a hard copy, but could give you more ways to take in this valuable resource. To best serve your needs, we'd like to get your feedback in this short survey. » Tell us what you think

    Charity Navigator

PHA Receives Highest Charity Rating for 10th Year in a Row

For the 10th consecutive year, Charity Navigator, the leading charity evaluator in the United States, awarded the Pulmonary Hypertension Association four out of four stars for sound fiscal management and commitment to accountability and transparency. This comes at a time when PHA is revitalizing development efforts and  fundraising initiatives through the launch of chapters across the country. » Read a note from PHA's president

Medical Community Bulletin
    PHA Online University

New PHA Online University Courses Available

Keep your knowledge sharp while earning CME/CE credits with these new offerings on a variety of topics:

  • Echocardiographic Assessment of Pulmonary Hypertension
  • Scleroderma-Associated Pulmonary Arterial Hypertension: A Case Study
  • Interstitial Lung Disease (ILD)-Associated Pulmonary Hypertension in Systemic Sclerosis: A Case Study
  • Optimizing Quality of Life: From Palliative Care to Financial Issues

View these offerings and more at: www.PHAOnlineUniv.org

PH News Headlines
   

» Deadly Bacteria That Resist Strongest Drugs Are Spreading

» More News

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Telephone Support

Caregivers
March 20, 2013
1:30 p.m. ET/10:30 a.m. PT

Parents
March 21, 2013
8:30 p.m. ET/5:30 p.m. PT

Patients
March 28, 2013
8 p.m. ET/5 p.m. PT

Upcoming Events

March 17, 2013
PHA Team at Shamrock Run
Portland, Ore.

March 23, 2013
The Woodlands CrawPHish Festival
The Woodlands, Texas

March 25, 2013
Breathing Your Way to Calm
Online webinar


» Go to the Events Calendar

Video Spotlight

Michael Rivera talks about PH on KZTV10

Michael Rivera, whose wife has pulmonary hypertension, appeared on KZTV10 in Corpus Christie, Texas. He talked about the disease, as well as the PH support group that he leads. » Watch now

Generation Hope Blog "Get Up and Get Moving!"
Seize the future, today. Act now to receive your resources to create an estate plan that benefits your family and offers hope to the thousands of others touched by PH.
Gain some piece of mind: A handy way to keep your medical documents in order
 
 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.