May 15, 2013

       
 
PHA News, Pulmonary Hypertension Association, Empowered by hope
   

Welcome to the new PHANews!

  Welcome to the new PHANews! You'll notice a shorter, sleeker newsletter this week. We have changed up the format so we can better highlight key news from the PH community. Want more? You can stay more fully up-to-date all the time by visiting PHA Daily Beat.
Latest Blog Post from PHA's President
   

PHA on the Road Again ...

When I came to PHA in 1999, one of the first things that struck me was the excitement about our International Conference. It was easy to understand why when I had the chance to attend the June 2000 Chicago Conference. Given the amount of work to produce these very special events, the reason PHA hosts them every two years, instead of annually, also became clear. » Read more

From the PH Community: Generation Hope Blog
    Generation Hope Blog

May Wedding Proves All Things Are Possible

By Kevin Paskawych
There is something in the air, and I am not referring to the pollen that constantly reminds me of why I actually “kind of” like winter. My allergies aside, there is something magical about this time of year; as my grandmother used to say, “May is the most hopeful month of them all.” I have to agree. » Read more

Opportunity for PH Kids and Teens
    PHA Art from the Heart

Creativity for a Cure: PHA Art from the Heart

PHA's Art from the Heart program involves kids and teens in the work to find a cure for pulmonary hypertension. Kids and teens are invited to create artwork that tells a PH story. Winning submissions will be printed on bookmarks that will be used to raise PH awareness and funds to fight PH. » Learn more

Uniting as a Global PH Family
    May 5: World PH Day

World PH Day Unites the Globe

World PH Day 2013, held May 5, brought PH associations around the globe together, fulfilling the goal of global unity set last year by the Asociación Nacional de Hipertensión Pulmonar in Madrid, Spain, when it held the first World PH Day. World PH Day 2013 included celebrations and sporting events, and Pope Francis even mentioned PH in his address on May 5. » Read more

Medical Community Bulletin
   

Applications Now Accepted for Gilead Sciences Research Scholars Program in PAH

The Gilead Sciences Research Scholars Program aims to advance knowledge in the field of PAH by providing financial support to three junior faculty researchers for a two-year period. Each award is funded up to $130,000. Application deadline is August 2, 2013. » Learn more

PH News Headlines
   

Research & Treatment News
» Pulmonary Hypertension Often Misdiagnosed, Research Finds

» Prediction Models May Overestimate Survival for PAH Patients Awaiting Lung Transplant

» Helping Kids with Severe Respiratory Failure Survive Until Lung Transplantation

Updates From PHers Around the World
» Golf Tournament Honors Pfafftown Woman's Struggles

» For Mother's Day, Pulmonary Hypertension Association Highlights Moms Juggling Parenting and Their Own Serious Lung DIsease

» More News

Connect
with PHA

 

Telephone Support

Parents
May 16, 2013
8:30 p.m. ET/5:30 p.m. PT

Patients
May 23, 2013
8 p.m. ET/5 p.m. PT

Caregivers
June 19, 2013
1:30 p.m. ET/10:30 a.m. PT

Upcoming Events

May 16, 2013
Insurance Issues for the PH-Treating Medical Professional
Online

May 18, 2013
2013 NC Cure PH Golf Tournament
Mocksville, N.C.

May 18, 2013
ATS 7th Annual Free Patient Forum
Philadelphia, Pa.

May 18, 2013
New Castle Six-Minute Marathon in Memory of Heather Wilson
Wilmington, Del.

» Go to the Events Calendar

Video Spotlight

PHA Japan video

PHA Japan released this video for World PH Day on May 5. The video features PHA Japan's "Get Breathless for PH" event at a ski resort in February. Watch the video

 
 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.