Jan. 8, 2014

       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Blog Post from PHA's President
    Hope

Moving into 2014...

Just before we ended 2013, I wrote to PHA’s Board of Trustees and other leaders about what an amazing year it had been… and where we were headed in 2014. I’d like to open the year by sharing some of those thoughts with you. » Read more

New Pulmonary Hypertension Drug Approved
    pills

New PH Drug Marks Twelfth Option for Disease

On Dec. 20, 2013, the U.S. Food and Drug Administration (FDA) approved United Therapeutics' oral treprostinil, an extended-release tablet commercially known as Orenitram, for the treatment of pulmonary arterial hypertension (PAH). Orenitram is the first orally administered prostacyclin analogue approved by the FDA for any disease. » Read more

From the PH Community
    2014 Road

Generation Hope Blog: The Unpredictable Road Ahead

It’s the New Year 2014, and we made it through the obstacles of 2013. However, it doesn't mean that 2014 is guaranteed to be easier than the previous year. Life is a journey, or perhaps it is more like a cross-country road trip with family and/or friends, and you will have great moments and memories along the trip. » Read Kiara's story

Online Education for Patients & Families
    PHA Classroom

View PHA Classroom Webinar Recordings

Did you miss a recent PHA Classroom e-learning event? There’s still a chance to receive the education you want. Recordings of all past PHA Classroom webinars and Conference sessions are archived on PHA Classroom. Recent recordings include:

  • Pulmonary Hypertension in Chronic Obstructive Pulmonary Disease
  • Surviving Survivor's Guilt
  • Chronic Thromboembolic Pulmonary Hypertension – What You Need to Know
  • Exercise-Induced Pulmonary Hypertension – What Is It and What Do We Do About It?

» View recordings

PH News Headlines
 

 

 

Research & Treatment News
» Research Breakthroughs Advance Understanding of Genetic Causes of Vascular Disease

Updates From PHers Around the World
» Women in Government Launches a Pulmonary Hypertension Legislative Toolkit

» Paving the Way for Pulmonary Hypertension Treatment

» Granville Summit Woman Wages Health Battle

» More News

Connect
with PHA

 

Telephone Support

Caregivers
Jan. 15, 2014
1:30 p.m. ET/10:30 a.m. PT

Parents
Jan. 20, 2014
8 p.m. ET/5 p.m. PT

Jan. 20, 2014
11 p.m. ET/8 p.m. PT

Patients
Jan. 23, 2014
8 p.m. ET/5 p.m. PT

Upcoming Events

Jan. 21, 2014
PHA Classroom Webinar: Newly Diagnosed Self-Study: PH Ready and PH Ready Caregivers Wrap-Up
online

Jan. 30, 2014
PHA Classroom Webinar: Newly Diagnosed? What You Need to Know
online

» Go to the Events Calendar

Video Spotlight

Traveling Hope Road

Last summer, PH patient Diane Leavitt drove across the country on a journey she calls “Traveling Hope Road.” As she went, she visited PH patients and others, filming interviews and creating a documentary. View her documentary

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.