March 5, 2014



       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Blog Post from PHA's President
    Hap Farber, MD

Is Hap Farber Really Skiing Down Four Mount Everests for PHA?

Well sort of… and he needs your help! Dr. Hap Farber is a force of nature… and he is getting ready to use that force to raise funds and awareness for PHA, as one of many Race of Our Lives events to support Team PHenomenal Hope. He will be skiing 100,000 vertical feet in one day… add it all together and that’s almost four times the height of Mount Everest! » Read more

Let Your Voice be Heard
    FDA Meeting with PAH Community

What Do You Want from New PAH Drugs?

The Food and Drug Administration (FDA) is making changes in how it approves drugs. For the first time ever, the FDA is asking, “What do patients want from new drugs?” Let the FDA know what you think. » Learn more

Get Updates on Our 2014 Conference
    The Checkered Flag Chronicles

Conference Updates – Anywhere, Anytime!

Follow along in our race toward Conference with our newly launched blog – The Checkered Flag Chronicles! We will be posting information about Conference, as well as stories from community members about their experiences at past Conferences. » Read our 2014 Conference Blog

Patient Education Resources
    PHA Classroom

New e-Learning Guide: Relationships with PH

Valentine’s Day has passed, but love is still all around. Although your relationships may change, a diagnosis of PH does not mean that your relationships have to end. This e-learning guide features helpful information about navigating all of your relationships as a PH patient. » Learn more

Medical Professional Education
    PHA Online University

Upcoming PHA Online University Webinar

March 6 at 2 p.m. ET/ 11 a.m. PT
Medical professionals are invited to attend “Diuretics in Pulmonary Arterial Hypertension.” This webinar will highlight aspects of diuretics such as pharmacokinetic considerations, right heart failure management, and patient education from the perspective of a nurse, pharmacist and physician. Continuing education credit is available. » Learn more and register

PH News Headlines
 

 

 

Research & Treatment News
» Yale Study Provides a Breath of Hope for Pulmonary Hypertension Patients

» Pulmonary Hypertension Community Has Much to Celebrate on Rare Disease Day

Updates From PHers Around the World

» PH Plus Blog: Living with a Holey Heart and PH

» Texas Singer Kyle Park Turns Up the Volume for The Woodlands CrawPHish Festival

» South Yorkshire, England, Backpack Boy Makes It to 14

» "Leanne Never Gave Up, Nor Will I": Exmouth Dad to Run London Marathon in Daughter's Memory

» More News

Connect
with PHA

 

Telephone Support

Parents
March 17, 2014
8 p.m. ET/5 p.m. PT

March 17, 2014
11 p.m. ET/8 p.m. PT

Caregivers
March 19, 2014
1:30 p.m. ET/10:30 a.m. PT

Patients
March 27, 2014
8 p.m. ET/5 p.m. PT

Upcoming Events

March 2014
Dr. Hap Farber's Race of Our Lives Ski Challenge
online

March 13, 2014
Race of Our Lives Spin Class: "An Evening of Wine-ing"
Northbrook, Ill.

March 25, 2014
History of PH: Progress in Clinical Management
online

March 28, 2014
St. Louis Trivia Night
Maryland Heights, Mo.

» Go to the Events Calendar

Video Spotlight

Anna Volino

"I didn't expect an 11-year-old to blow by mind. But, she definitely did. Meet my friend, Anna Volino," says Chloe Temtchine. Chloe is a singer/songwriter with PH, and her new song "Be Brave" will be available on iTunes on March 29. » Watch this video

Anna Volino

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.