Our Commitment to Data Security
To prevent unauthorized access, maintain data accuracy, and ensure the correct use of information, we have put in place appropriate physical, electronic, and managerial procedures to safeguard and secure the information we collect online.
The information we collect on this website is used to improve the navigation and/or content of our website and to notify you about updates to this website as requested. This information is maintained in a retrievable format and may be amended by contacting web@PHAssociation.org.
If you would like to request access to review, update or change in any way the information you have supplied, you may do so by sending an e-mail to web@PHAssociation.org. You can correct factual errors in your personally identifiable information by sending us a request that credibly shows the error. We use this procedure to better safeguard your information. To protect your privacy and security, we will also take steps to verify your identity before granting access or making corrections.
Third Party Release Protection
Except as provided herein, the Pulmonary Hypertension Association will not sell to any third party your name, address, e-mail address and member name, unless you provide your informed consent, except to the extent necessary to comply with applicable laws, police investigations, or in legal proceedings where such information is relevant. The Pulmonary Hypertension Association allows access to database information by third parties providing technical services, such as e-mail or IT support. In those instances, the third party is bound by these terms and has agreed to hold this information in confidence. Your informed consent shall be in the form of an "opt in" or similar policy. You understand and agree that the Pulmonary Hypertension Association may disclose to third parties your zip code, gender and/or age, but only in the form of aggregated information.
The Pulmonary Hypertension Association reserves the right to offer you third party services and products based on the preferences that you identify during the registration process and based on your subsequent preferences; such offers may be provided to you by the Pulmonary Hypertension Association.
The Pulmonary Hypertension Association reserves the right to terminate your account if it learns that you have provided false or misleading registration information.
Chat Rooms, Discussion Forums, and Links
You should remember that other members, patients, and third parties participating in PHA chat rooms, forums, symposiums, bulletin boards, and other online public discussions are not controlled by PHA. While we may monitor these public forums to control inappropriate content from being posted, we cannot control the privacy of information divulged by you in these forums. If you choose to reveal personal, contact, or medical information in these public forums, you do so at your own risk.
We may also provide links to other sites that we believe might be useful or educational for you. Please note that we are not responsible for the privacy policies or actions of those third parties operating these linked web sites. We suggest that you access the online privacy policies of these web sites or contact the relevant parties concerning their data collection policies.
Voluntary submission of information
Occasionally we may communicate with you concerning matters of mutual interest or wish to include you in a human-interest article. In such cases, we will not publicize your name without your consent.
Additionally, you may be asked to participate in occasional online surveys. Your participation in these surveys is appreciated, and no information of a personal nature gathered from a survey will be disseminated to a third party without your consent. If you respond to our surveys, we may use the information to compile and publish anonymous polls and studies or to determine your eligibility for certain programs or events. We maintain the security of both our database and our website to the best of our ability and currently available technology.
Collection of technical information
PHA may use the IP address of all site visitors to assist us in diagnosing problems with our server, analyzing user trends and traffic patterns, tracking user movement, improving web site design and layout, and administering the web site. Your IP address is a number automatically assigned to your computer when you use the Internet, and cannot be linked to personally identifiable information. Accordingly, the information obtained from your IP address may be used only as aggregated and anonymous data, and we will never know who you are unless you specifically tell us. Like many other web sites, we also use "cookies," which are small computer files that we transfer to your hard drive, for the proper functioning of our message boards.
Questions or Concerns?
If you have any questions, concerns, or comments about our privacy policies or practices, we would like to know what they are so we can address them. Please contact us at 301-565-3004 x119 or email us at web@PHAssociation.org.
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