About PHA

PHA's Mission and Vision

Our mission is to extend and improve the lives of those affected by PH.

Our vision is a world without PH, empowered by hope.

From simple beginnings – four women who met around a kitchen table in Florida in 1991 – the Pulmonary Hypertension Association has evolved into an international community of over 16,000 pulmonary hypertension patients, caregivers, family members and healthcare professionals.

We are now the largest and oldest PH association in the world, and we are changing the history of an illness. In the 25 years since that first meeting, the number of FDA-approved PH treatments has grown from 0 to 14, PHA research programs have been supported by commitments of more than $17 million, and more than two dozen Pulmonary Hypertension Care Centers have completed PHA’s accreditation process.

PHA is a 501(c)(3) nonprofit organization that relies on donations to fund its many programs, including the nation’s largest PH patient and caregiver support group network, lifesaving early diagnosis awareness and education programs, specialty care resources, and research to find ways to prevent and cure PH. For 13 consecutive years, PHA has received the highest rating — four stars — for fiscal accountability and transparency from Charity Navigator, placing it in the top half of 1 percent of all rated charities.

We continue to work every day to end isolation, provide education, involve our constituents in everything we do, and find a cure for pulmonary hypertension.

Join our community

By connecting with PHA, you are part of a community that:

Supports one another.

With support groups across the U.S., we spread hope, information and provide a sense of community.

Turns strangers into friends.

No matter where you live, you can be a part of the PH community. PHA’s online community, myPHA, and online and telephone support services let you connect with others any time, ending isolation and providing hope.

Shares your stories.

Stories of patients and caregivers help others feel less alone with this disease. Find inspiration in print in Pathlight, our quarterly magazine, and in our online series, PHenomenal Lives.

Helps out when called upon.

Following PHA’s core belief that any person whose life is touched by PH has the right to fight back as much as health and interest allow, volunteers lead support groups, answer the Support Line, work at meetings, and so much more. And, year round, the work of the PHA staff is complemented by loyal and industrious volunteers who come to the PHA office to help get out mailings, stuff packets and whatever else it takes to keep things running smoothly. Become a PHA volunteer

Promotes our common cause.

From visits to local offices of Congressional representatives to taking part in Advocacy Day visits on Capitol Hill, our advocates get the attention of legislators when it comes to PH. Advocate with us

Raises awareness.

If your life has been touched by PH, you understand the urgency of spreading awareness of the disease. Join us in promoting our Heart2CurePH public awareness campaign.

Increases knowledge.

For medical professionals who diagnose and treat PH and for patients who manage their disease, knowledge is essential. PHA's educational opportunities are almost limitless, from our biennial International PH Conference and Scientific Sessions to our e-learning websites for patients (PHA Classroom) and healthcare providers (PHA Online University).

Diminishes boundaries.

PH is an illness that knows no boundaries. That’s why PHA serves as a hub for PH associations around the world, facilitating an exchange of ideas and information on a regular basis. Learn more about our international community.

At the same time we are doing all of these things, we never lose sight of what’s most important to our community:

Finding a cure for pulmonary hypertension.

Learn about the cutting-edge research that PHA supports, make a donation to support PHA’s research program and raise awareness online with the hashtag #Heart2CurePH.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.