Coping as a Caregiver

Couple at PHA on the Road in St. LouisAs a caregiver for someone with pulmonary hypertension, you devote a lot of your time to someone else. When your day-to-day concerns are tied to someone else’s comfort and care, it’s possible to put your own physical and mental health on the back burner.

While you may feel as if you don’t have time to tend to your own needs, the reality is that the most effective and supportive caregivers are those who also take time to take care of themselves. The resources in this section explore how caring for someone with PH can affect you: your emotional health, your relationships and your outlook.

Are you the parent of a child with PH? Find resources on parenting, family relationships and more in the Coping as a Family section.


Videos and Webinars

PHA's psycho-social resources for caregivers are made possible through support from from the Medtronic Foundation, Novartis Pharmaceuticals and the Jansen Family Foundation.



Patient's Survival Guide: chapter for caregivers!

Patients Survival Guide Cover

Pulmonary Hypertension: A Patient's Survival Guide is the most comprehensive caregiver and patient resource on pulmonary hypertension.

Learn more & order your guide today!

Living with PH Guides

Download one or more of the Living with Pulmonary Hypertension PDF guides below to learn about what to expect and how to move forward if you or someone in your family is living with pulmonary hypertension.

Meet Other PH Caregivers

Rich Vandiver

Connect with other friends and family in one of our email, telephone or local support groups.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.