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Specialty Pharmacy Advisory Board

PHA Advisory Boards

The Specialty Pharmacy Advisory Board is part of a unique industry accountability program that helps PHA improve medication services for PH patients. Patients, caregivers, medical professionals, and representatives from specialty pharmacies and drug manufacturers convene to address common issues and make recommendations that promote best practices among specialty pharmacies. The Advisory Board meets quarterly.

Submit a question or comment to the Specialty Pharmacy Advisory Board

Specialty Pharmacy Advisory Board Job Description (PDF)

Jane N.

Jane N.

Caregiver (Parent)

I am a caregiver for my daughter, Nicole who was diagnosed at 15 years old due to a congenital heart defect that went undiagnosed which created Eisenmenger's Syndrome and PH.

Colleen B.

Colleen B.

Patient

PHA is my lifeline and is at the forefront of hope for today and a cure for tomorrow, so I try to give back in as many ways as possible.

Katherine (Anne) L.

Katherine (Anne) L.

Patient

My diagnosis of Pulmonary Arterial Hypertension was a "wake up" alarm for me to take a more active role as a partner in my own healthcare. The right medicines, medical care by specialists, a healthy diet, appropriate exercise, and a positive attitude combined with the education and support of PHA, friends, and family help me to lead a full life. Helping others is my way of saying thank you.

Kevin P.

Kevin P.

Patient

I'm a PH patient and advocate hailing from Marietta, Ohio and have been a member of multiple advisory boards with PHA. When I'm not working on PH related projects, I run my own production company, Paskawych Entertainment, and work as a community organizer in Marietta.

Tara S.

Tara S.

Patient

I was diagnosed with idiopathic PAH in June 2008 and have since been a strong advocate for quality treatment access. I have served as an ambassador and peer mentor for a number of different PH treatments and have also been very active with PHA. In my free time, I love to travel and am also a huge Packers fan.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.