Patient Mentor Profile

Carson Smith


Diagnosed in 2002

"I am a young professional working in public health research. I have had PH since the middle of high school (2003). I have been able to complete undergraduate and two masters programs since my diagnosis. When I have time I love salsa dancing, yoga and traveling."

About Carson:

  • Born in 1986
  • Lives in Missouri
  • Type of PH:Associated with Pulmonary Veno-occlusive Disease
  • Languages: English

Carson feels comfortable discussing her experiences with:

  • oral medication
  • working with PH
  • traveling with PH
  • communicating with school personnel about PH
  • communicating with medical personnel
  • communicating with children about PH
  • online communities (PHA email groups, message boards, chats)

Contact Carson:

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Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.