Getting Down to Work

To Do List

"Start small and work up, don't expect to start with a lot of people. We [patients] are few and far between, so anyone wanting to start a society needs to have the time to commit themselves, as a lot comes from one or two key people. Things will then branch out, but one must have a lot of motivation to keep the 'ball rolling'."
- British Columbia PH Society
  • Do what you can with what you have.
  • Support your members as cost-effectively as possible.
  • Hold patient meetings at a member's house or at a conference room in your PH clinic or hospital.
  • Diversify your fundraising efforts.
  • Reach out to your personal contacts for non-monetary donations, such as prizes, services and goods.
  • Sell merchandise branded with your organization's logo and address.
  • Hold seasonal special events
  • Assess your association's expenses and sources of income and determine whether your group should collect membership fees.
  • Research organizations and grant opportunities.
  • Build relationships with the pharmaceutical companies in your country.
  • Find ways to thank and appreciate your volunteers.
  • Involve members in as many ways as possible.
  • Assign roles quickly and continue to recruit new volunteers.
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