Parents of children with PH

Stibbs Family
Monthly Parents Telephone Support Group

The Pulmonary Hypertension Association is home to a growing community of families with children affected by PH. Connect with others who share your experience and learn about the resources available to you as your family adjusts to life with this illness.

Become an informed advocate. 

The more you know, the better equipped you’ll be to advocate for your child in a variety of situations. While there’s currently no cure for PH, there are PH-specific therapies available to manage symptoms and improve your child’s quality of life. Explore the pages below to learn more about making informed choices and ensuring your child receives the best care possible.

Opportunities for your child.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.