Find Parent-to-Parent Support

Family support groupMeet other parents of infants, children or teens with pulmonary hypertension in one of our virtual or local support groups.

PHA Caregivers Telephone Support Group

A toll-free telephone support group for caregivers of patients with PH. This hour-long conference call offers PH caregivers of all types across the U.S. and Canada the chance to connect in real-time for support, encouragement and information sharing.

Calls are held monthly; see the upcoming schedule.

PHA Parents Online Community

Join our group for parents by signing up for myPHA, the online social network for PH patients and caregivers. Connect with other parents and caregivers of PH kids, and participate in discussions that are private to the group. Join now

PH Email Mentors

PHA's PH Email Mentor Program includes a team of parents who are ready and eager to answer your questions by email. They can't provide medical advice, but they can share their experiences raising children with PH and help you find resources to ensure your child receives the best care possible. Email a parent mentor

Local Pediatric Support Groups

Washington, DC
View contact info for leaders

View contact info for leaders

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Boston, Massachusetts
View contact info for leaders

Interested in starting a pediatric support group in your area? Contact

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.