Transplant and Pulmonary Hypertension

Information for Friends, Family Members and Parents Ava and her family

Standing by a loved one during the transplant process can be taxing and emotionally wearing. Like everything else in life, this process will have its up and downs and there will be good days and bad days for patients and families alike. While it is crucial for a transplant candidate to have a strong support system and a loved one by their side, it is equally important that caregivers take care of themselves.

The transplant process affects not only the patient being listed, receiving and recovering from transplant, but the patient's entire family as well. Financial pressures, stress and the emotions that go along with transplant can overwhelm families and create tension in relationships. Throughout the process, it is important to make sure that the needs of everyone involved in the process - friends, family members and parents - are being met.

Language Based on Treatment Fact Sheet Issued by PHA's Scientific Leadership Council

To review Conflict of Interest Disclosures for PHA's medical leadership, visit: Disclosures
Last reviewed in 2009

Lung Transplant Information

Read a consensus statement on lung transplantation written by PHA's Scientific Leadership Council.

Get Support

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PHA's Transplant email group is a private forum where you can openly discuss your questions about and experiences with transplantation. We welcome PH patients considering and awaiting transplant; caregivers with questions about the transplant experience; transplant recipients interested in sharing their stories and networking with others; and any other PH community members interested in transplant

Join PHA's Transplant Group

Meet PHA’s Transplant Email Group Committee

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.