Pulmonary Hypertension: A Patient's Survival GuidePatient's Survival Guide

It is hard to have complete understanding of a disease as complex as pulmonary hypertension (PH) when first diagnosed or even when you have lived with it for many years. Written by a patient and first published in 1998 and now in its fifth edition, Pulmonary Hypertension: A Patient's Survival Guide offers comprehensive information on what you need to know as a patient or caregiver. Read more

Glossary of Pulmonary Hypertension Terms

This glossary appears in Pulmonary Hypertension: A Patient's Survival Guide (5th ed.). It was modified for the web to include links and additional references. View Glossary

Pulmonary Hypertension Acronym Decoder

Acronyms and shorthand are commonplace among members of the PH community. But no one is born knowing the difference between your PAP and your PCP. Newcomers and old-timers alike can use this convenient alphabetical list to brush up on common PH-related abbreviations. View decoder

General Resources

Find more information and resources about PH and related topics, including disability assistance, clinical trials, emergency response, medication safety, supplemental oxygen, air travel and transplant. View links

Related Health Organizations

Explore related disease organizations for more information on some of the illnesses commonly associated with pulmonary hypertension. View links

Pharmaceutical and Specialty Pharmacy Companies

See a complete listing of all the manufacturers of PH treatments.



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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.