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Rare Disease Day

Thank you for joining PHA on Rare Disease Day on Feb. 28, a global initiative that raised awareness among the general public and decision-makers about rare diseases and their impact on patients' lives.

A disease or disorder is defined as rare in the U.S. when it affects fewer than 200,000 Americans.

During Rare Disease Day, the PH community shared a number of memes on social media that invited people to learn more about PHA.

While Rare Disease Day won’t come back around until 2018, the PH community is still downloading the images and sharing them with their social media friends and family.

The memes illustrate the connection between PH and other diseases; tell supporters how they can advocate for PH patients; and provide information to encourage people to join the PHA community.

We invite you to continue to share these popular memes throughout 2017!

 

Update Your Social Media Profile Pictures:

Connecting Periwinkle Hearts and Hands

Twitter Profile Image

Facebook Profile Image

Instagram Profile Image

Click an image to download it

Connecting Periwinkle Hearts and Hands 
 
 
 
 

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.