Welcome! While you don’t need to create a site user account to access most of the resources and information on our site, we have some added features you can access if you do.

Advantages to having a site user account are:

  • Manage your email subscriptions
  • Forms will be pre-populated with your contact information
  • You can easily check your membership status
  • You can easily update your profile and contact information
  • You can add a support group site as a favorite link on your “My Account” page and get signed up for emails from your support group
  • For Medical Professionals, doctors will be able to update your “Find a Doctor” listing and allied health professionals will be able to access the “Members Access” section for PH Professional Network members

New Users:
Go to the "New User Registration" form link below to create your new user account. Read our Privacy Policy

Forgot your User ID or Password?
Go to the "Forgot your Password or User ID?" link below to have your User ID and a link to reset your password sent to you.

Discussion Board Users
This is a separate user account from your discussion board login.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.