Patient story

Nairivis Maiz Gonzalez

Read the English Version

"Desde ese momento estoy en una constante lucha con esta enfermedad."

Nairivis Maiz GonzalezTengo 32 años nací con una cardiopatia. En el año 1984, cuando solo tenia 4 años desarrolle HP, producto de esta condición congénita. Desde ese momento estoy en una constante lucha con esta enfermedad sin embargo, tengo una vida normal y parezco una persona saludable aunque algunos días sienta los embates de este mal. mi tratamiento no ha sido mas que Nifedipino(antagonista del calcio) desde el momento del diagnostico y hace unos meses tomo sildenafil ademas de diuréticos, anticoagulantes entre otros.


English Version

"I have been in a constant battle with this disease."

I am 32 years old and I was born with a heart defect. In 1984, when I was only 4, I developed PH as a product of this congenital condition. Since that moment I have been in a constant battle with this disease; however, I have a normal life and I seem like a healthy person (although some days I feel the effects of the fight). My treatment has been limited to Nifedipina (calcium antagonist) from the diagnosis, and as of a few months ago, sildenafil, diuretics, and anticoagulants, among others.



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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.