Our Journeys

Patient Story

Violet Ladd

My story starts out in July of 2006 while I was working 12 hour shifts as a certified nurses aide. My breathing became harder at times and while at a doctor's visit with my husband, I told the doctor about my problem. He said i should have a chest xray and an electrocardiogram so the next day that's what we did. He told me the right side of my heart was almost twice its normal size. He said I should have an echocardiogram done and after that I was told I had stage 4 pulmonary hypertension (PH). I didn't have medical insurance. I had to go to a local county hospital where I was put on 4 liters of oxygen.

When I was approved for state medical assistance I was then sent to a specialist right away. I was put on Flolan and was told that the next and only other thing would be a heart and lung transplant. I have a great family support team and great doctors. After 4 years I was taken off of oxygen. Eleven months later I was taken off of Flolan and am still doing good. The only PH med that I am on now is the Letairis. Great things do happen and I praise GOD every day for finding the right doctors for me because prior to being diagnosed I was always told I had Bronchitis.


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.