Patient-to-Patient Support Line Volunteer Profile



Diagnosed in 2003

"I am married and have a beautiful 4 year old daughter. I am active in my local support group and our walk and roll fundraising event. I work with medical students at Cleveland clinic. I like to watch movies and TV, play my Playstation 3, and listen to heavy metal music to wind down at the end of the day. I spend a lot of time with my daughter going to the park. I talk to a lot of people about PAH already because a lot of people don't know what it is."

About Daniel:

  • Born in 1969
  • Lives in Ohio
  • Type of PH: Idiopathic
  • Associated Conditions: Congenital Heart Disease, Liver Disease, Sleep Apnea
  • Languages: English

Daniel feels comfortable discussing his experiences with:

  • infused medication
  • oral medication
  • supplementary oxygen
  • cardiac or pulmonary rehabilitation
  • depression and mental health issues
  • working with PH
  • traveling with PH
  • communicating with school personnel about PH
  • communicating with medical personnel
  • communicating with children about PH
  • advocacy and awareness-raising work
  • fundraising and organizing special events
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Daniel:

Disclaimer: Patient-to-Patient Support Line volunteers are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.