World Pulmonary Hypertension Day

PHA Joins Fellow International Organizations to Celebrate World PH Day on May 5

The Pulmonary Hypertension Association (PHA) is again joining forces with PH-community serving organizations around the world to recognize World PH Day, celebrated on May 5 since global PH-serving organizations established it in 2012.

The 2016 observance coincides with PHA’s 25th anniversary and comes one month before PHA’s International PH Conference and Scientific Sessions. World PH Day 2016 is an opportunity for PHA to highlight progress made as organizations in nearly 80 nations around the world have united in an international effort to fight PH.

PHA will recognize World PH Day with:

  • A legislative briefing and lunch on Capitol Hill, bringing Senate and House of Representatives staff together for lunch and programming to discuss PH-specific legislation and educate them about PH;
  • A pre–World PH Day reception: an opportunity for Silver Spring, Maryland and Washington D.C.-area PHers to gather to honor PHA CEO Rino Aldrighetti for his 17 years of service ahead of his June 19 retirement. The event will include celebratory video messages from international PH-organization leaders and PHA will launch the Rino Aldrighetti: Leading from the Heart Fund.

    The fund is an opportunity for the PH community to establish a stream of ongoing funding to contribute to PHA's comprehensive patient/caregiver/family support, education, awareness and advocacy programs and to support the general mission of the Pulmonary Hypertension Associaton, while remembering and honoring the association's first CEO. We will announce contributions to the special fund to date on June 19 at PHA's International PH Conference and Scientific Sessions during the formal leadership transition ceremony. Guests and those unable to attend may contribute to the fund online. Learn more about Aldrighetti’s work at PHA here.
  • A World PH Day photo album to be shared on Facebook.

Successes in advancing PH care over the past 25 years are the result of PH support groups and organizations around the world creating a network of patient-centered associations that organically integrate learning opportunities for and among patients/caregivers/families, medical professionals and scientists.

One of the keys to advancing PH care around the world is PHA’s International PH Conference and Scientific Sessions, which will be held June 17-19 in Dallas, where it is expected to draw nearly 2,000 families, medical professionals, scientists and PH-related industry professionals from over 30 nations. PHA and similar organizations around the world recognize that the continued fight against PH will take more work, funding and collective learning.

PHA has contributed and will continue to contribute to global learning through PHA Online University, the Advances in PH journal that PHA mails to 50,000 physicians worldwide each quarter, Our PH Library and other PHA and PHA-partner resources. The global PH community will also experience important changes as PHA reports data from its PH Care Center accreditation and patient registry programs, our Heart2CurePH public awareness campaign and medical education programs, particularly PHA Online University and Conference.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.