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Brad A. Wong, President & CEO

At the Heart of PH Advocacy for Quality, Affordable Health Care and PH Research

As the heart of the pulmonary hypertension (PH) community, the Pulmonary Hypertension Association (PHA) advocates on behalf patients and caregivers while also empowering them with the resources necessary to actively champion for access to the treatment and care they need and deserve. Faced with new challenges and opportunities this year, PHA is escalating our efforts to both represent the community and ensure that our members have tools to help them make PH advocacy personal.
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Traci BraxtonWE tv’s Braxton Family Values Reality Star Traci Braxton Teams with PHA for a Cause Close to Her Heart

National recording artist Traci Braxton, who stars alongside her family on the hit WE tv reality show, Braxton Family Values, has three very personal reasons for supporting the Pulmonary Hypertension Association (PHA) as a PHA celebrity champion. Her son and two of her sisters battle diseases that can be associated with pulmonary hypertension (PH), a life threatening, often misdiagnosed progressive lung disease. Read more >>

Trial resultsSERAPHIN Trial: Study Finds Macitentan Can Improve Quality of Life for Some PH Patients

Patients with WHO Group 1 PH (PAH, pulmonary arterial hypertension), a serious, progressive and often fatal lung disease, typically have a number of symptoms and limitations that affect the quality of everyday living. Depending on the severity of the disease, patients may experience negative physical, social, emotional and psychological impacts. Research has indicated that macitentan (Opsumit®), an endothelin receptor antagonist (ERA), might help improve the health-related quality of life (HRQoL) and reduce the risk of deterioration over time. Read more >>

Rare Disease DayPulmonary Hypertension Association Rallies Community Ahead of Rare Disease Day

PHA is mobilizing the pulmonary hypertension (PH) community for a Rare Disease Day effort to reach people who have PH and don't know it and those at risk for developing the life-threatening disease. On Feb 28, go to PHA's Facebook page and make our Connecting Periwinkle Hearts and Hands image your profile picture. It will connect to our press release, which you can read here.


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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.