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Rare Disease Day

Pulmonary Hypertension Association Rallies Community Ahead of Rare Disease Day

PHA is mobilizing the pulmonary hypertension (PH) community for a Rare Disease Day effort to reach people who have PH and don't know it and those at risk for developing the life-threatening disease. On Feb 28, go to PHA's Facebook page and make our Connecting Periwinkle Hearts and Hands image your profile picture. It will connect to our press release, which you can read here.

Terrence JFilm Actor/TV Personality Terrence J Renews Commitment to PHA to Promote Early Awareness for Often Misdiagnosed, Deadly Disease

True to his mission to use his status as a platform to help others, actor, TV personality and executive producer Terrence J (Jenkins) has stepped up his commitment to raising awareness about pulmonary hypertension (PH). Looking forward to a busy year with his new talent deal with MTV and VH1, Terrence J will take time to continue using his influence to get more people living with this too-often misdiagnosed and misunderstood deadly, progressive lung disease diagnosed early and accurately. Read more >>

PH Care CentersNew PHA Accreditation Program/Registry Giving New Understanding to Specialists Caring for People Living with Rare, Often Misdiagnosed Life-threatening Breathing Disease

Two years after the launch of the world’s first accreditation program for pulmonary hypertension (PH) care centers, specialists are gaining new understanding about how to care for their patients who are living with the too-often misdiagnosed deadly disease. The Pulmonary Hypertension Association (PHA) established the accreditation program to raise the overall quality of care and improve long-term outcomes for PH patients. Read More >>

Caring Voice CoalitionCaring Voice Coalition PH Assistance Fund Closes Again

Caring Voice Coalition (CVC) has informed PHA that its PH Assistance Fund has closed. The fund opened for a short time at 9 a.m. ET, Monday, Jan. 16. As CVC anticipated, the fund closed the same afternoon, shortly after reopening. CVC accepted applications on a first-come, first-served basis.


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.