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Advocates

Speak Up Now to Protect Your Health Care Rights

On Monday, Members of Congress released a plan to replace the Affordable Care Act (Obamacare). The proposal includes some important patient protections that you fought for including prohibiting benefit caps. However, other provisions would take coverage away from some individuals with PH, and many critical details are still uncertain.

Join PHA and act now to safeguard treatment access for the PH community! Tell your Members of Congress to keep the needs of the PH community a priority throughout the health care reform process. Email your Members of Congress now.


Newly-Diagnosed Webinar SeriesNewly-Diagnosed Webinar Series: Join Us March 23

Join PHA for the first webinar of the newly-diagnosed series, “Tests, Tests and More Tests: What is PH Diagnostic Testing Telling my Doctors?” We will review many of the clinical tests that are used in the diagnosis of PH. The session will discuss the risks and benefits of each test as well as how the information derived from testing is used to unravel different diagnoses of pulmonary hypertension. Register to attend >>

PH Care CentersStudy Shows Diversity Among PH Centers Accredited by PHA

Study results published in ATS Journal show broad diversity among treatment facilities qualifying for Pulmonary Hypertension Care Center (PHCC) accreditation. Pulmonary Hypertension Association (PHA) PHCC accreditation is based on meeting key measures of care for pulmonary arterial hypertension (PAH) patients as established by a committee comprising U.S. clinical specialists. The study was an analysis of the 34 facilities – 30 adult sites and four pediatric centers – that received PHA’s PHCC Center of Comprehensive Care (CCC) designation during the first year of the accreditation program. Read more >>

Tom Lantos Innovation in Community Service AwardsLantos Grant Application Deadline March 31

If you had $5,000 to do something to help the PH community, what would you do? This isn’t an empty question – this is a real opportunity for you through the Lantos Awards. Named for a true hero of the PH community, theTom Lantos Innovation in Community Service Awards creates opportunities for those in the PH community to foster new ideas that hold the promise of more rapidly advancing our common cause. Read More >>

O2 breathePHA Kicks Off National O2 breathe™ Fundraising Events Season

Partnering with patients and their personal and professional caregivers, the Pulmonary Hypertension Association (PHA) kicks off its 2017 national O2 breathe™ special events season to raise funds and awareness to fight an often misdiagnosed and misunderstood deadly disease. The 2017 season begins with the 2nd Annual PHA O2 breathe Chicago Trivia Night on March 18 and the PHA Northern California O2 breathe Walk on March 25. Read more >>


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.