Pulmonary Hypertension: A Patient's Survival Guide - Fifth Edition Summer 2014 


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Pulmonary Hypertension: A Patient’s Survival Guide is a resource book written by a PH patient and published by the Pulmonary Hypertension Association. Known informally as just the “Survival Guide,” this important book serves as a soup-to-nuts guide for patients and caregivers. It includes detailed and frank information about the mechanics of PH, the latest treatments, patient care and lifestyle issues.

Eight out of the 17 chapters, plus the glossary and appendices, were updated for this latest version of the book. Of note, the chapter “Tell Me Doc, How Long Do I Have?” reports on improved survival rates from the REVEAL Registry, plus all new charts. Other updated topics include insurance coverage, new resources, as well as conventional, drug and surgical treatments. Learn more about the Survival Guide.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.