Submit a Clinical Trial

In order to ensure that communication regarding studies is provided in a standardized, objective and user-friendly manner, all requests to place information on PHA’s website must be submitted on the following form.

The responsibility for accuracy of the information is yours. PHA will only post the name of the study, a brief description of the study, and a website where users can find more information. Any other information will not be posted on the PHA website. PHA reviews the submitted forms for clarity and absence of prejudicial statements; posting may be rejected if these criteria are not met. PHA places high priority on not raising hopes prematurely, including at a subliminal level, so careful objective wording is recommended.

Trial information will be posted for a duration of six months. If you would like to keep it posted for longer than six months, you must contact PHA prior to the posting’s expiration. All submissions will be reviewed by members of PHA’s Scientific Leadership Council and, if approved, will be posted within 3 weeks.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.