Welcome to our group's website! PHA support groups provide support, education and most of all hope. If you are in the area, we encourage you to join us.

We have patients attending from Iowa, south of Rochester and from the north, as far as Duluth, MN, plus from La Crosse, WI on the east, besides locals and other near by towns like Stewartville and Kasson. Due to the long driving involved, it is not possible for everyone to attend all the meetings. However our local members like to have one meeting every month from Spring through the end of the year. We do not meet in Winter due to inclement weather conditions.

Our meetings are held generally on third Saturdays except when it is more convenient for the speaker from 1:00 p.m. to 3:00 p.m. A lunch is provided at meetings held in Victoria's Ristorante with free parking on the street and downtown ramps. The address is 7 First Avenue SW, Rochester, MN 55902

We welcome all patients and caregivers to our meetings.

Leader Contact Information

Feel free to contact our group's leaders to share your story, ask questions and get connected with our group.

Leader : Neeta Pai, Patient 

Mayo Clinic Supporters: Diane Bray, RN & Susan Tointon, RN
View leader contact info

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Upcoming Meetings and events 

Next Meeting Date: 

April 16th, 2016

Saturday at 1:00 p.m. thru 3:00

Venue: Victoria's Ristorante, 7 First Avenue SW, Rochester

Please call Neeta Pai at 507-206-6678

An e-mail will be sent out to notify all the members, followed by a post card from PHA with reminder of the meeting.

If you would like to be notified, please add your e-mail address or send a note to Neeta. 

Upcoming Topics, not in any particular order for next year:

  • Genetics & CRSPR - Cure in the horizon?
  • Emergency Preparedness.
  • Facing Hot Summer & Cold Winter weather with PH.
  • To Travel or not with PH -How to's.
  • Grief of Loss and Counseling.
  • Making PHriends to have a social life.
  • Managing your Meds with your nurse.
  • Depression & PH

More suggestions are welcome!


                          Live in the Moment!Tke care - Stay healthy,ppy and peaceful! 

Please do check out our blogs of news titbits by clicking on 'Blog' on the left corner of this page. 

Your PH story and photos are welcome to be posted here and on Our Journeys page. Do e-mail them to Neeta Pai. Thank you! 

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Management of this Site: Each support group website is managed by the group's volunteer leader, usually a patient. If you find outdated contact information, old meeting information, or any content that requires attention from PHA, please send an email with the link to the group site to:
Medical Disclaimer: Medical information included in these pages, including in newsletters and to outside links, may not have been reviewed for accuracy and appropriateness by PHA. We encourage patients to discuss their healthcare with their doctors. We do not provide medical advice on personal health matters, which should be obtained directly from a physician. PHA cannot be responsible for web visitors' actions taken as a result of their interpretation of information contained on these pages.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.