A support group that is geared to PH patients in their 20s, 30s and 40s, their caregivers, family & friends.  Our participants live in Western PA and Eastern OH.

We aren't your typical support group.  No folding chairs.  No stale meeting rooms.  No boredom.  No more feeling isolated in your PH diagnosis.  

Lots of laughter - and sometimes tears.  Lots of talking - sharing our hearts, frustrations & triumphs.  Lots of fun events that are open to the whole family.  Lots of interaction in between activities (ie. facebook, email, text).

Whether newly diagnosed, or a long-term survivor ...

If you're looking for friendship, support, and someone who just understands ...

If you have lots of questions, or have walked this journey long enough to have some advice to share ...

If you're feeling great, or long for better days...

Living life together.

Welcome to our group's website! PHA support groups provide support, education and most of all hope. If you are in the area, we would love you to join us!

Leader Contact Information

Our group has 2 leaders: Holly & Julia.  

Feel free to contact our group's leaders to share your story, ask questions and get connected with our group.  One of us will be happy to get you plugged-in!

View leader contact info

Upcoming Meetings and Events

Come meet with other patients and caregivers at our next event!

Previous Meetings and Events

(click "PHOTOS" on the left to see some highlights from our past events)

Ducky Tour of Pittsburgh

          - Dinner @ Houlihan's by Station Square

          - Kindly funded by Accredo

Attended PHA on the Road in Pittsburgh, PA

Double Decker Bus Tour of Pittsburgh

          - Duquesne Incline, Children's Museum, Phipps Consevatory

          - Dinner @ Cheesecake Factory in Pittsburgh, PA

Attended PHA's 10th International Conference in Orlando, FL

Dinner @ Elephant & Castle in Grove City, PA

Christmas Lunch @ Bravo in Cranberry Twp., PA

          - Santa and Mrs. Claus made an appearance with toys for all the kids!

          - Kindly funded by United Therapeutics

Pittsburgh Pirates Game

Attended PHA on the Road in Boston, MA

Dinner @ Montana's Rib & Chop House in Hermitage, PA

Ladies' Spa Weekend @ the Buhl Mansion in Sharon, PA

          - Dinner @ Tara - A Country Inn

          - Lunch @ the Buhl Mansion Sunroom

          - Kindly funded by a generous anonymous donor, Accredo & United Therapeutics

Participated in the Pittsburgh Support Group's Walk PHor a Cure

End of Summer Picnic @ Settlers Cabin Park in Robinson, PA

          - Kindly funded by United Therapeutics

Participated in PHA's 2013 Congressional Luncheon in Washington, DC

          - Dinner @ McGinty's Public House in Silver Spring, MD

Attended the PH Summit: Translating Discoveries into Patient Care @ the Cleveland Clinic, Cleveland, OH

          - Dinner @ Cheesecake Factory in Lyndhurst, OH

Celebration of Life Lunch @ Bahama Breeze in Robinson, PA

Christmas Luncheon @ Julia's Home in Baden, PA

          - Kindly funded by the PHA Support Group's Central Fund

Dave & Busters in Homestead, PA

          - Kindly funded by the PHA Support Group's Central Fund

Planned the 1st Annual PHenomenal Hope 5k Run/Walk in Pittsburgh, PA (April 2014)

          - Kindly sponsored by United Therapeutics & the PHA Special Event's Central Fund, and the generous donations of countless individuals & businesses!

          - Raised just over $22,000 toward finding a CURE!!

Pittsburgh Power (Arena Football) Game in Pittsburgh, PA

Participated in the Pittsburgh Support Group's Walk PHor a Cure

Attended PHA's 11th International Conference in Indianapolis, IL

Wagon Trails Animal Park in Vienna, OH

Attended Crusin' PHor a Cure: Classic Car Show & PHA Fundraiser in Austintown, OH

          - Hosted by Maria Martuccio's family in honor of her 10 year PH diagnosis

          - Lunch @ Quaker Steak & Lube in Austintown, OH

Nicole's PHriends 2nd Annual Golf Outing in Girard, OH (June 2014)

          - PHA fundraiser hosted by Nicole Stafford (member of our group)

          - Raised approx $35,000 toward finding a CURE!!!

View Calendar



Management of this Site: Each support group website is managed by the group's volunteer leader, usually a patient. If you find outdated contact information, old meeting information, or any content that requires attention from PHA, please send an email with the link to the group site to:
Medical Disclaimer: Medical information included in these pages, including in newsletters and to outside links, may not have been reviewed for accuracy and appropriateness by PHA. We encourage patients to discuss their healthcare with their doctors. We do not provide medical advice on personal health matters, which should be obtained directly from a physician. PHA cannot be responsible for web visitors' actions taken as a result of their interpretation of information contained on these pages.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.