support group meetingWelcome to our group's website! PHA support groups provide support, education, and most of all hope. If you are in the area, we encourage you to join us.

Leader Contact Information

Feel free to contact our group's leaders to share your story, ask questions and get connected with our group.

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Upcoming Meetings and Events





An informal meeting featuring stories and advice from members young and old, new and established. Please come!




Feel free to bring snacks or supper, or something to drink, for you alone or to share.




Monday, October 7, 2013, at 6:30pm


Hershey Medical Center


University Fitness and Conference Center


Room 302B

For more information call Mary at 347-515-4153


Our support group is open to patients, caregivers, and friends of patients.  We welcome those who live in the central Pennsylvania region and who are interested in meeting us for conversation and support.

We meet once a month, ideally on the first Monday.  Sometimes we have a speaker and sometimes we don't.  As you can see, we don't stand on ceremony.  ;-)  The group has been in flux for the past few years but we are trying to gt back to a regular schedule of meeting.  Construction Zone!  Please be patient!  :-)

For a campus map, you may click here: (bulky, but it works).

The Fitness and Conference Center is number 16.

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Management of this Site: Each support group website is managed by the group's volunteer leader, usually a patient. If you find outdated contact information, old meeting information, or any content that requires attention from PHA, please send an email with the link to the group site to:
Medical Disclaimer: Medical information included in these pages, including in newsletters and to outside links, may not have been reviewed for accuracy and appropriateness by PHA. We encourage patients to discuss their healthcare with their doctors. We do not provide medical advice on personal health matters, which should be obtained directly from a physician. PHA cannot be responsible for web visitors' actions taken as a result of their interpretation of information contained on these pages.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.