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Another Year, another successful christmas party!
Saturday, December 01, 2012

Today was our annual PH Support Group Christmas Party.  It took me back to December of 1999 when I was first diagnosed.  I was 35 yrs. old, just lost a child and had a 4 yr.old daughter I wanted to see grow up!  It just so happens that December that I found the phone number for Hilan White - a wonderful lady who helped start the support group in Louisville.  I called her, she invited me to their next meeting - which happened to be their christmas party - and the rest is history.  That day I found solace in the fact that there were people just like me facing many of the same challenges.  The friendships that were forged that day will never be forgotten.  Here we are 13 years later and we have many more members from all walks of life.  We have shared our stories, our hope, our faith and have created a bond that will last.  We had a new member that came today.  Her story was all too familiar.  We who were devastated at one time by the same diagnosis were able to give her hope, help and inspiration.  We were also able to show her that it is not a death sentence.  We have a member of our group diagnosed since 1983 (Go, Tom!) and you could see her face light up when told that news.  We have a couple of other "long-termers" who have shown us that there is way more life to be lived after diagnosis!!!

Well, today was a great dinner at Buckheads and it was wonderful to share it with our PH Phamily.  I just wanted to tell everyone how blessed and thankful I felt today and how much those who weren't there were missed --




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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.