Colleen BrunettiPHA Board of Trustees

Colleen Brunetti, M.Ed., C.H.C.

Development Committee Chair, Finance Committee member, GO PHAR Co-Chair, owner
New Hartford, Conn.
Board term ending: June 2017

Colleen Brunetti was diagnosed with PH on January 2, 2008 after a trip to the emergency room for unrelated symptoms. Since then, she has been under the care of a PH Specialist and on a variety of treatments. Colleen lives in in Connecticut with her husband and their two children.

Colleen’s view on PH is two-fold. The first is to choose to live life fully and purposefully, despite illness and possible limitations. Second, she believes that if there is an expectation of a cure, the individual members of the PH community must have an active hand and voice in making that happen.

To that end, Colleen has dedicated as much as she can to PHA. Besides serving on the Board, she helped co-found Generation Hope, has spearheaded or co-led several fundraisers, spoken to support groups and fundraisers around the country, testified twice to the FDA on behalf of PHA and patients everywhere, and published a book to help others learn to thrive, not just survive, no matter the diagnosis. (See book HERE).

Professionally, Colleen started her career as a teacher, but PH forced her to leave the field shortly after diagnosis. Since that time, she has worked to re-define her professional life with consulting, writing, teaching online and health coaching.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.