Donor Stories

 McGoon Household Makes Investment in PHA a “Family Affair”

Bonnie and Mike McGoon

Bonnie and Michael McGoon see their involvement in the Pulmonary Hypertension Association (PHA) as a “family affair.” In their household, Mike and Bonnie have tried to instill a spirit of giving both time and resources. “It is important for us to send a message to our children about giving to the people and places that have impacted their own life as well as the lives of those close to them,” Bonnie said.

As a tangible expression of their giving philosophy Mike and Bonnie made the decision to include PHA in their estate plans. As members of PHA’s Legacy of Hope Society, Bonnie and Mike are making a statement about the importance of planning for the future. In exploring the question, “Why are we here?,” the McGoons came to believe that “it is to have something to contribute for the next generation, something to live on after us.”

Mike’s first leadership role with PHA was as a member of PHA’s Scientific Advisory Board (now known as the Scientific Leadership Council). Mike then became a member of PHA’s Board of Trustees, which he chaired from 2006-2008. “PHA is a unique organization, “ Mike says. “From a medical perspective it is amazing to see an organization made up of patients, caregivers, researchers, physicians and allied health professionals working together toward a common goal.”

Bonnie’s involvement has evolved as well. As a first-time participant at a PHA International Conference she could sense right away the importance of PHA in the fight against this illness. “I could see firsthand how PHA not only touches the lives of its members but changes their lives for the better.” Since then Bonnie’s involvement has ranged from organizing fundraising galas to benefit PHA to volunteering at our biennial conferences.

“While we are here, we want to give as much of ourselves as possible.” the McGoons concluded, “But beyond that we want to turn something that is temporary (life), into something that can sustain the future. From a practical standpoint planned giving is the easiest way to do this.”



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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.