Patient-to-Patient Support Line Volunteer Profile

Melanie KozakMelanie Kozak

Diagnosed: 1998
Patient-to-Patient Support Line Volunteer since: 2011

What unique skills do you bring to the role of a Support Line Volunteer?

I was a psychology major and I never got a chance to work in that field because of my PH. I love talking about PH, talking to patients, and I enjoy being a support group leader so much that I thought I would make a great Support Line Volunteer. Because of having PH for 15 years, I’ve been on every treatment except for one and I really feel like I can relate to anyone who calls the Support Line. I was also diagnosed at 21 years old, and can relate to young adults who are newly diagnosed. I feel like I also inspire patients of all ages for having PH for 15 years, and for having it at such a young age.

What does being a Support Line Volunteer mean to you?

Being a Support Line Volunteer is such an honor. I care so much about every individual who calls in, and often times I connect with them. I am concerned about them. I put them in touch with support groups in their area or doctors and I can’t help but want to ask them to call me later. I just want to make sure they are okay and connected. It doesn’t have to be my week on the Support Line — I will talk to anyone who needs me.


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.