Patient-to-Patient Support Line Volunteer Profile

Laurie JohannsenLaurie Johannsen

Diagnosed: 2005
Patient-to-Patient Support Line Volunteer since: 2010

Why should someone call the Support Line?

The Support Line is a chance to talk to others with pulmonary hypertension. We are living with the same illness. We can share experiences with one another. Something drove the individual to call the Support Line, and as volunteers, we are there to happily listen.

What inspires you?

I am inspired to share my experience with PH. I believe the best advice I can give to callers is by sharing my own experiences. I can only tell them my story. Everyone has their own story. I want to let these callers know things do get better.

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801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.