Patient-to-Patient Support Line Volunteer Profile

Liz BrighamLiz Brigham

Diagnosed: 2004
Patient-to-Patient Support Line Volunteer since: 2005

Why are you a Support Line Volunteer?

Being a Support Line Volunteer helped me get over myself. Most of the time, I speak to patients who are absolutely terrified, and I have to give them hope. Being this positive for them does wonderful things for me and has changed my entire view.

Did you ever have a memorable experience on the Support Line?

One time, I was on the phone with a man who was fishing for information about PH. He was very intelligent, well spoken and articulate. He called in three times that week and kept asking many questions. I later found out that he was a physician who believed he had been having symptoms of PH. Because of his curiosity, I gave him my personal email to keep in touch. About three months later, I heard back from him. He was so thankful for my help that week.

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801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.