“She asked, ‘You women go through all of this every day?’ and we said, ‘Yes, we do. We do and we have no choice because we want to live.’” — PH patient Diane Ramirez, on former U.S. Senator Elizabeth Dole’s reaction to medicating for PH

Mother with PH patient childWhile it can be difficult to imagine in the days and months following diagnosis, many patients develop strategies to cope with the physical and emotional aspects of living with PH and lead happy, fulfilling lives. With a bit of patience, planning, and flexibility, many people affected by PH find ways to work, travel, exercise, and do the things they loved before they were diagnosed.

Today, people diagnosed with PH can benefit from the experience of thousands of other patients who have learned to effectively manage this illness. Explore this section to find tips, tools and resources to help you adapt to life with PH.

Empowered Patient Online Toolkit

Download PH-specific templates and checklists to create your own personalized medical binder.

Day-to-Day Living

Simplify your daily routine with these tips from longterm survivors.

Coping with PH

Identify strategies for coping with the emotional and social aspects of PH.

Health and Medication Management

Manage your medications and coordinate your healthcare.

Emergency Situations

Take the time to prepare for emergencies before they happen.

Working with PH

Make and keep a place for yourself in the workforce by listening to your body and knowing your rights.

Diet and Nutrition

Keep your diet on track with advice from PH experts.

Exercise and PH

Get active without overexerting your body.

Traveling with PH

Plan ahead for safe and comfortable travel with PH by car, plane or train.

Climate and PH

Prepare for changes in weather and altitude.


FacebookTwitterInstagram iconLinkedInYouTube

For optimal viewing of, please use a standards-compliant browser such as Google Chrome or Firefox.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
    Privacy Policy    Terms of Use    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.® | © 2017 Pulmonary Hypertension Association. All Rights Reserved.

BBB Accredited Charity BEST in AmericaCharity Navigator

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.